My husband, Daniel is the epitome of good. He has an amazing soul that is so full of love, a giving heart that never asks for anything for himself, and a genuine personality that anyone can love.
Recently, he has been diagnosed with Ehlers Danlos Syndrome, Hypermobility Type, an inherited disorder that affects the connective tissues in the body. From the small tissues in the eyes, to the large ones that hold things together, everything is eventually affected. It is extremely rare, and doesn’t generally have an onset of symptoms until age 27-30. (Read more about Ehlers Danlos Syndrome HERE ) There is currently no cure for this disease, just pain management and physical therapy practices.
When I met Daniel at the age of 15, he was an all around athlete. Football,
soccer, track and wrestling; the kid could do it all with such ease. Now, on our regular gym or grocery shopping trips, something almost always hurts. I’ve personally seen him experience shoulder pain, lower back pain and spasms, issues with his grip strength, and the psychological pain this can cause.
It’s truly heartbreaking to me, and I wish I could do more than I can to help . When we move back to Arizona at the end of the Medboard process, we plan on buying a home and making it as accessible as we can, not only for his future, but for our many family members and friends who are now disabled veterans. I also hope to find the best medical treatment options available to him.
I love Daniel more than words will ever convey, and I want to give him the best treatment and life I can. Any contributions to Daniel’s GoFundMe account will go towards any future treatment for this disease, as well as the above mentioned home renovations. I also ask that you please share his story via his GoFundMe page, or this blog post. We hope to bring light to such a rare disease, so that more testing and research can be done to find a cure.
Thank you, and God Bless. ❤